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Hepatitis C Living with it, inside prison and out in the world.

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  #1  
Old 11-29-2005, 11:04 AM
BlueEyes01 BlueEyes01 is offline
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Exclamation HepC~~~Check In Here

I thought I would make a post for people to come and stop in and introduce themselves who have loved ones/or themselves with HepC. This place is to talk about everything, from vents, to concerns,advice I hve a pal who has it and I am having him write a blog about this, and I will be posting some of his entries once I receive it
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Old 11-29-2005, 04:24 PM
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C'mon people... I know your out there.
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  #3  
Old 11-30-2005, 10:36 AM
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This is a good idea and it would be great if everyone with Hep C could check in on a regular basis. (like our bi-polar ck. in) I'm sure people that are getting help from different meds and different treatment could help others with Hep C.
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Old 11-30-2005, 10:50 AM
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This is a great idea I have a loved one that has had Hep-C for over 20 years. I really don't understand why half of our members are not checking in? Surely we are not the only prison support group in the world that don't know people in prison who have Hep-C. Hep-C is a life threatening decease with no known cure, come people we can't go through our lives pretending it will go away. Love Barb
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  #5  
Old 11-30-2005, 11:11 AM
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Blueeyes,

This is a great idea!! And I am glad that you suggested it.

I have a LOT of loved ones and friends who have Hep C. I know it's hard to talk about but just to know you are not alone might help you get over it.
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Old 12-01-2005, 07:06 PM
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I have hep C myself.
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Old 12-02-2005, 07:59 AM
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Quote:
Originally Posted by samsfi
I have hep C myself.

Hello Samsfi Nice to see you here, can I ask what if any meds you are taking ?? And do they seem to be helping???
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Old 12-02-2005, 10:31 AM
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I have attended a conferences and seminars on Hep C when I worked in health care. I remember hearing a physician say that almost everyone with a prison tatoo has Hep C. That was 5 yrs. ago. I sure hope it's not true now. I have a penpal who is covered with tats he got in prison and I fear he has it and I don't think he's ever been tested--and probably doesn't want to know. I don't think it's something they test for routinely unless they pay for it, at least not in AZ. One of my pals who was a heavy drug user has told me he has it. He seems to suffer no symptoms.

I participated in a World Aids Day ceremony yesterday and was thinking there should be a similar thing to raise awareness for Hep C. When I worked at the Health Dept., I was shocked to learn how common it was.
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Old 12-02-2005, 03:35 PM
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Chintath, seems like your friend may be in denial??? Its the fear of the unknown I guess. I strongly suggest anyone who has a loved one who is in prison who has prison tats, please get tested!!!!!! And please try to tell your loved one please do not get any prison tats!!! Its really for their own benefit and health!!!!! Some may have it and not suffer any symptons, its best to get checked, because down the line it can get worse.
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Old 12-05-2005, 03:49 PM
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Hi,
I work with a liver specialist, I'm on this website because my husband is in jail Don't think there is no treatment for Hep C. I see people get cured all the time and some don't. It depends on different factors, but it mainly depends how your body response to treatment. But it can be cured!! Especially if it is detected early. Any questions just ask!!!!

Last edited by Sanchez06; 12-05-2005 at 03:55 PM..
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  #11  
Old 12-12-2005, 11:24 PM
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i have hep c but i know i got from my herion use of injections. my late husband died in 2002 from it, i was locked up and due to get out in 30 days. but, i expected it and so did he. he'd been sick for a long time, and the 3 trs i was down he still used. we knew he had before i got busted never confirmed it we just knew. i got teested 6 mos. before getting out, i too knew it but its part of the consquences of my actions. i now am drug and alcohol free and live with it. i take no drugs at this time but am under a drs. care
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  #12  
Old 12-13-2005, 06:55 AM
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We just found out that my ex husband has Hep C. He is schizophrenic and is a good man who does not deserve this. What is scary is we have NO idea where or how he could have been exposed. My daughter is not handling thsi well at all.. she is her Dad's main care giver since our divorce, she's even been his legal guardian since she was 18!
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Old 12-13-2005, 09:28 AM
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I don't think it's always easy to get tested in prison. I believe where he is they have to pay for the tests themselves and he can barely afford hygiene products. He told me when he gets out he will go to a real doctor.

Does anyone know if they do any type of testing when inmates are admitted to prison?

Quote:
Originally Posted by BlueEyes01
Chintath, seems like your friend may be in denial??? Its the fear of the unknown I guess. I strongly suggest anyone who has a loved one who is in prison who has prison tats, please get tested!!!!!! And please try to tell your loved one please do not get any prison tats!!! Its really for their own benefit and health!!!!! Some may have it and not suffer any symptons, its best to get checked, because down the line it can get worse.
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Old 12-13-2005, 09:34 AM
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Quote:
Originally Posted by mrsdragon
We just found out that my ex husband has Hep C. He is schizophrenic and is a good man who does not deserve this. What is scary is we have NO idea where or how he could have been exposed. My daughter is not handling thsi well at all.. she is her Dad's main care giver since our divorce, she's even been his legal guardian since she was 18!

Im sorry to hear that. There are tons of things on the bet that your daughter can read concerning HepC and I think they have many HepC support forums that she can join, so she can talk to others that are in the same boat, hopefully you ex will have good care, and thats the thing with HepC its so sneaky and you have no idea exactly when you could of contacted this, unless you have a good idea where it came from. Tell your daughter stay strong, her dad is going to need it
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Old 12-13-2005, 09:36 AM
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last week i went back to my liver dr. he has suggested that i receive the interfron treatments and from my research an from some people that i know who have gone thru the treatments i've decided not to do it. it would have only a 50% chance of clearing out. i don't like those percentages. he says my could be ok for the next 20yrs so at my age now, i'll be in my 70s by then to me all the side effects aren't worth goig thru. i don't engage in risky behavior anymore so what ever will be, will be. its part of consquences to my actions the way i see it.
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Old 12-13-2005, 09:39 AM
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Quote:
Originally Posted by chintath
I don't think it's always easy to get tested in prison. I believe where he is they have to pay for the tests themselves and he can barely afford hygiene products. He told me when he gets out he will go to a real doctor.

Does anyone know if they do any type of testing when inmates are admitted to prison?

They have to pay for the test themselves??? what if they are indignant??? Thats just crazy. I thought usually they test for that stuff when they are first admitted into prison, I guess he would have to request to be tested??? If you want I can call the prison for you Chintath, just pm me, I will find out if he has to pay for it.
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Old 12-13-2005, 09:44 AM
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in calif. prisons it doesn't cost the inmate anything. except to see the dr. which if your idigent is free . co-payments are $5 the state will test you and let you know exactly what is goig on. when i was tested my hep c was dormant at the time. i think it became active cuz i did start to drink after paroling and was under an extreme amount of stress cuz of the death of my husband . alot factors into how you take care of your whole body.
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Old 12-13-2005, 09:47 AM
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Sparky I am so sorry to hear about your husband, did you mean he died from his addiction or Hep C??? Is there any reason why you dont want to do the Interfron treatments??? He says you may be ok for 20 years but thats not guaranteed . And congrats on your sobriety!!!!!!!!!!!!!!!!!! please reconsider the treatment I know is a pain but... it may help even more.
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Old 12-13-2005, 09:55 AM
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i've gone over all the treatment pros and cons and to me i 'll deal with what ever comes i've talk to my family and they seem to agree that it is my decision and give me full support. my husband was an iv user for close to 40yrs so no telling how long he had it. it was from the hep c cuz he had NO liver at all the drs were baffeled as to how he stayed alive. the good man upstairs kept him that way until we were able to talk on the phone. he died 6 days after we talked. i told him it was ok to go that me and the kids would be fine. he needed to hear it from me before he would let go.
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Old 12-13-2005, 09:58 AM
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(((((((((((((((hugs to you Sparky)))))))))))))))))))))))))
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Old 12-13-2005, 10:16 AM
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you know i love life now, i have 8kids and my 28th grandchild is do this month. i just completed my class for alcohol and drug counselor. i put my internship on hold for 4mos so that i could do my dental work that i put off for so long. my daughter who hwason drugs too has been clean now for 10 mos now holds a real job so while home i babysit. i love the time i have with all my family, enjoy every minute of it
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Old 12-13-2005, 11:07 AM
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Sorry been busy the past couple of days.
I am currently on interferon and copegus-- I have until March.
When I started my viral load was over 3 million-- at the 12 week mark it tested lower than 10--- meaning yes I have it but not enough in my system that it even registers on the scale. (I guess for the lack of a better term it's a remission sort of thing-- still I have it and can pass it)
So as rough as it's been it's been worth it.
I was lucky even though I would have contracted it... well now around 19yrs ago-- I my liver biopsy showed basically no damage, which I was told is rare and shocked my Dr's but some people's systems seem to fight it off better than others so I'll take it as I got lucky---
So for me so far so good-- and it's looking like at this point I'm a success story for the treatment-- I'll keep you guys updated and anyone with questions on the treatment I'm on (which is pretty much the standard) feel free to pm me.
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Old 12-13-2005, 11:14 AM
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Oh and Sparky--
Please do some further research and reconsider treatment-- you are right about a lot of things but statistically it often does give you a better chance than 50% it will work as well yes you could live many more years without it but you also have to take into consideration the quality of your life--- why be sick and unable to enjoy things if you have the chance to feel good and live to the fullest.
I understand what a personal decision this is as I'm there myself but I can tell you how I feel at this point physically overall still on treatment-- outweighs all the side effects which although no party you really get used to as it goes and realize what to do and not do as far as eating and activity to help you along.
-- no it's not fun but statistically it is the best way to go. I realize for someone incarcerated it's often not an option but for you and me it is.
I too was a herion addict and did this to myself... but guess what I've turned that around-- and not only am I worth taking the treatment to improve my life and ensure or at least give myself the best chance that hepC is not what kills me-- but I deserve it.
If you want to talk pm me-- but for yourself-- you deserve the best and medically if you can the treatment is the best especially if your Dr. has suggested it.... and remember for those that love and need you it's important too. It's a personal thing but give it some more thought.
Best of luck.
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Old 12-13-2005, 03:28 PM
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Hey thats great Samsfi!! Im glad your a better, and that goes to show with the right treatment that works, there is hope.
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Old 12-13-2005, 06:36 PM
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I feel the same way there is hope-- and that's why I am open to sharing my experiences about having HepC myself and being on the treatment-- Of course everyone is different and in no way would I represent myself as a medical professional. As always I encourage people to get their facts from forums like the Center for Disease Control and the such. Still this is a great forum for us all to share and help one another.
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