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Old 06-08-2018, 12:30 PM
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**Sorry for the long post, I hope this story prevents someone from going through what we did........

Hello everyone,

Its been a rough week for me, my son, and other family members! I wanted to post my story here, for other parents to read and be well-informed should this happen to their incarcerated child.

I visited my son last weekend. My car was acting up, and I really didn't have the extra budget to do the 8 hour round trip drive, but something told me I needed to get there to see him. A friend graciously lent me her car to make the trip. When I visit, I usually stay overnight at a budget hotel, because its dangerous for me to drive home after such a long day.

My son had called earlier that week, saying he went to the prison gym with a buddy, who really pushed him to work out and lift weights to exhaustion. My son said, "Its like I forgot everything I knew about working out when I was on the streets.". He didn't think he could lift the amount that his friend said he should, but the "buddy" kept egging him on, saying don't be a wimp, etc., you can do it, "you're going to be a man", etc. How young guys typically talk to each other in a gym setting. My son lifted until he couldn't move (upper body), and the next day, they went back to work out and he did his lower body until he couldn't lift anymore. Then, the pain set in...which was severe.

My son works in the kitchen, and doesn't want to lose his job, so he forced himself to go to work. He had nothing for the pain, and someone gave him some ibuprofen to take the inflammation down, but he was still in considerable pain. This happened 3-4 days before my visit. On Saturday, he said that Friday morning, his urine was dark brown. I was very alarmed and told him to put in a medical request to be seen (which normally takes 2 weeks). That evening at the hotel, I researched what could cause the dark brown urine. What came up was Hep C, which is what his cell mate has.

Sunday morning at the visit, he looks okay, he says the pain is almost completely gone, but his urine is still brown. I tell him to request a test for Hep C from medical. When I hug him goodbye, he promises me he'll do it. I was worried the entire ride home.

That evening a good friend who is also a nurse called me to ask how my son was. I mentioned his working out, and the color of his urine. She told me to call the prison immediately, that he needs to be seen in the ER. Its around 8 pm by this time, I call and no one picks up on the main switchboard. I called the suicide hotline extension, and spoke with the Lt. there. I explained that I'm sorry I had to get through on the suicide hotline, that my son is NOT suicidal, but he is in trouble. I told him to let medical know to call him down immediately for a blood and urine test. He needs to be tested for Rhabdomyolysis. The Lt. told me he would alert medical right away.

I sent an e-mail to my son, titled "Emergency - Get to medical now!!!", and called the prison back the next morning. I let them know what was going on. They finally called him in around 2 pm, 6 hours after I called, and his urine has been brown for about 3 1/2 days now.....they told him he had blood in his urine, but to go back to his cell, rest, and drink water.

He called me then, and explained that medical sent him back to his cell. I said I would call the prison back. I told my son if they take him back to medical, that he needed to be persistent about getting to the hospital ER.

I called and got a gentleman in the prison infirmary. He was very defensive at first, but I calmly explained that I knew he was doing the best he could do with the resources he had, and that I understood the limitations of his position. He said he could not "tell the doctor what to do." This is when I explained, calmly but very firmly, that I have only ONE son, and he has only TWO kidneys. And those kidneys were most likely in the process of failing. I explained that he needed to be tested and treated immediately for probable rhabdomyolysis. He told me he would check on the prison computer to see my son's status, and it showed they were "bringing him back to medical right now". I thanked him.

Long story short......my son has been in the hospital for 5 days, he is supposed to be released today. I truly believe if I had not intervened, he would not have gotten the care he did. His blood and urine levels are returning to normal ranges, but his liver enzymes are slightly elevated, so they are going to monitor him in the infirmary before he is released to go back to his cell.

I was able to get an update daily because I called the prison and asked for it. This is my advice to other parents, and it is only based on my own experiences: Be your child's advocate, and your own advocate. Be kind, calm and patient, but persistent! It is about helping your child get the best treatment, no matter what else is happening. Research. Know what you are talking about. And treat anyone who is dealing with your child, with understanding and respect.

I will hear from my son as soon as he is able to call from the prison infirmary. I'll post an update here when I do.

I hope that I have helped at least one other person avoid the worry and anxiety I've had this week. If your child works out, tell them about rhabdomyolysis.......google it, send them some information on it. Tell them not to overdo it, it can mean their life.

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Old 06-08-2018, 01:27 PM
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Thanks so much for sharing your story. The medical system in prison is very slow to respond to potentially dangerous conditions unless they fall into the obvious critical areas (heart attack, etc.). Thanks to your efforts, and the fact that you were polite and diplomatic in your approach, your son avoided a serious calamity.

I will share another advocacy story (one that was less serious) that might help another parent: I was an inmate at an FCI and had a toothache. I went to dental, they x-ray’d and said the root looked fine, so they couldn’t do anything. Truth was, the tooth had just begun the process of failing. A root canal would have saved it, but instead it worsened to the point of having to be removed a month or so later. LESSON BEING that most prisons will do root canals, so if you have a severe toothache, ask for one! I also have a condition that causes me to lose consciousness if I have any significant medical trauma, so I had my dentist write the prison explaining this. Due to the dentist’s letter, they approved me going out to an oral surgeon for the removal, as they do not use sedation in the prison dental office.

Working out is a huge benefit in prison, but I hope your son also learned a valuable lesson in not being influenced by the idiot “experts” on the weight pile! Thanks again for sharing your harrowing story, and congratulations on being such a good advocate for your son - you need them more than any other time in your life when incarcerated.
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Old 06-08-2018, 01:51 PM
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One federal prison I was in couldn't keep a dentist on staff, and they were against paying an outside dentist to come in (at least they almost never did). One poor guy with an abscessed tooth was unable to get treated for over a month. None of the medical PAs or the one ancient doctor would prescribe antibiotics for a dental problem. Of course any pain medication above "over the counter" is never available to federal prisoners except when they are sick enough to be sent to a real outside hospital. Unfortunately prisoner's well being is only a concern to the bop when they decide it is.
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Old 06-09-2018, 11:19 PM
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So glad your son was able to get help due to your persistence.

Sometimes the problems are with the inmates trying to be "strong" and suck it up by not going to the Dr. I've made it very clear to my husband that he needs to go to the Dr. asap the minute something is not right with anything. My biggest fear about him going away has been something going wrong medically. Fortunately, after 6 months, other than 1 small virus, he has been ok so far.

He has avoided any activity that can get him injured, so no team sports. Only does individual workouts - treadmill and elliptical. Stays away from weights. He has consistently seen guys getting hurt and it's just not worth the risk.

His one issue is that he has advanced gum disease. He did get a call out for the dentist a few months ago and the guy had the nerve to tell him that while he does have gum disease, that it doesn't meet the BOP's standards of being gum disease so he can't do a cleaning on my husband. Wtf? My husband was already in the chair, the guy should've just done it! He said he would let my husband get a call out in June or July to get the cleaning then at least, but really, talk about in efficient. Fortunately, my husband got approval for the special proxabrush from his periodontist and they let me send that in so that is something.

Otherwise, he has been generally satisfied with the medical care he has received but a lot of guys don't like the Dr there and the rumors about the guy are rampant, albeit most untrue. They think the guy isn't licensed in the state, but I had to tell my husband you don't need to be licensed in the state when you're a Dr in the Federal system. Similarly to being a lawyer in the Federal system. These guys look for any excuse to start gossip and trouble. I laugh because I work in a high school and have two teenage daughters, and the gossip among the men is a million times worse than what I hear between the high school girls!!
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Old 06-10-2018, 06:50 AM
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Its funny because as I was reading the OP's first post I thought of that rhabdomyolysis right away. I'd just read an article about it online.
My hub used to lift weights when he was younger but no longer. I still worry about him tho with his bike rides.
He rode the other day two days in a row.....long hard rides. On his way home he cramped up so bad he could barely walk let alone ride his bike. Two separate people stopped to ask him if he needed a ride. He said no to the first one, but yes to the second one. They ended up driving him all the way home. He said he couldnt even move his legs. He had to grab them with his hands.
It made me mad (as in....he should know better!! for gods sake he's 60!)
He said he came home and ate pickles and drank pickle juice. (wtf?)
He's better now and he did go on a short ride yesterday (20 miles.......flat riding no hills)
I'll never understand this craziness.




To the OP.......Im sooooooooo glad you got him help!! I hope he recovers fully, and takes much better care if he decides to lift weights again in the future.
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Old 06-10-2018, 08:28 AM
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Quote:
Originally Posted by tatonkawia View Post
This is my advice to other parents, and it is only based on my own experiences: Be your child's advocate, and your own advocate. Be kind, calm and patient, but persistent! It is about helping your child get the best treatment, no matter what else is happening. Research. Know what you are talking about. And treat anyone who is dealing with your child, with understanding and respect.
Good advice and well said. I believe there are many in the prison system who are lazy, disinterested, don't care. That leads to inmates needlessly suffering or worse. I also believe there are people in the prison system who will do the right thing and act. It is hard for inmates to have access to those people. You got through to and got the right people to act because of your persistence and how you handled it. You may have saved his life because of that. Good for you.
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Old 06-19-2018, 10:08 PM
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Thank you to everyone who read and also to those who commented. This is a very late update, I apologize for not writing this sooner.

I did get a call from my son the day after he was discharged from the hospital, and then released from the infirmary (after approximately 23 hours).

His first words on the phone? "Mom, I want to thank you, for saving my kidneys, and my life. The doctor said he doesn't know how I still have both my kidneys. You always say you can't do anything to help me in here, and look what you did for me."
Such sweet words to hear. Of course, I'm a Mom, I would do anything I can for my boy. He doesn't take that for granted, though.

He went on to tell me about the hospital, and the inmate ward they have set up there. There were guards on shift with him. Some were nice, others not so much. He was shackled to the bed the entire time, (one ankle, one opposite wrist). He was on IV fluids and since he was unable to get up to use the bathroom, they gave him a bottle to fill. He called for the nurse when it was full so they could empty it and bring it back to him. I asked him about being shackled, he said it was hard at night when he went to sleep, but the bed was so comfortable he didn't mind it too much. (Having a real mattress and pillow was a luxury).
He said the nurses were all very nice to him, some gave him advice. They all agreed his sentence is way too long (15-30 years). He went in when he was 19. He is 23 now. He told me some of the guards let him have the remote and watch TV, others did not. One guard unshackled his wrist so he could have two hands free at meal times. He told me they let him eat anything he wanted.

I made two thank you cards. I mailed one to the hospital staff, and one to the infirmary staff at the prison. Normal CPK levels in the blood are at about 200. My son's level was at 130,000 when he arrived at the hospital. Without the prison making the decision to send him to the ER (at my insistance!) and without the hospital staff, I am sure my son would have been in kidney failure.

I will say this: I know God is watching over my boy, and put me in the right place at the right time to help him. A lot of people played a part in taking care of him, and I'm grateful to every one of them!

Tatonkawia
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Old 06-20-2018, 10:48 AM
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That is wonderful that you sent a thank you to the staff of both places. That almost never happens & can totally change a person's outlook. You know they will remember him & maybe treat others better. So glad he is better. It shows that it takes hammering on the door sometimes & not giving up.
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Old 06-21-2018, 06:08 AM
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Thank you for your post and your persistence Tatonkawia. AZ's prison medical is really bad and they continue to ignore court orders to fix the problem. The ACLU didn't file against the providers but only against the state the goal being to make the state do something rather than the provider just paying fines. It hasn't worked.

Boys can be so difficult. My son has broken his hand playing basketball, which was treated a month afterwards by a specialist who said he could do nothing and good thing it had healed properly enough.

He broke his foot twice playing basketball. Both times I told him it was broken but medical said it wasn't. They gave him ice and tylenol and a brace. The 2nd time my son believed me, but he knew they would say it's only sprained. He bought ace bandages and kept it wrapped and supported as much as he could. The first time he couldn't even get around. He asked for a wheelchair and was told no. They did give him crutches eventually. Still, he wouldn't let me call or do anything. This last time, they kept him in the infirmary for 3 days and day 4 finally gave up on their xray tech coming in to work and took him to the hospital. This time, it was only sprained. But the hospital xray showed it had been broken in 2 places. The ER doctor asked him if he knew he had broken his foot twice before.

He has a scar under his eye from a basketball injury.

He has also hurt his back exercising. It has been over 2 years and they did give him a couple of different meds but nothing has really been done to fix it or even diagnose it properly. I suspect he has really messed up a disc.

I suggested he should avoid playing basketball. I am seriously not sure if that is some code phrase or if he really did all those injuries playing basketball.
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Old 06-22-2018, 05:30 AM
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tatonkawia........Im so so happy he's ok.
WOW for you for getting him the help he needed, when he needed it most.
fantastic work on this.
Very glad to hear he's doing better and I hope he learned a lesson and takes better care of himself. Whew!
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Old 06-23-2018, 09:49 AM
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tatonkawia........Im so so happy he's ok.
WOW for you for getting him the help he needed, when he needed it most.
fantastic work on this.
Very glad to hear he's doing better and I hope he learned a lesson and takes better care of himself. Whew!
Thank you sidewalker!
My next mission is to get him to take better care of his teeth. lol
Seriously, I am just grateful I was there at the right place and time. Gods doing! He knows it was a close call, I think he's going to take better care to see that he doesn't overdo it again.

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Old 06-23-2018, 10:04 AM
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Thank you for your post and your persistence Tatonkawia. AZ's prison medical is really bad and they continue to ignore court orders to fix the problem. The ACLU didn't file against the providers but only against the state the goal being to make the state do something rather than the provider just paying fines. It hasn't worked.

Boys can be so difficult. My son has broken his hand playing basketball, which was treated a month afterwards by a specialist who said he could do nothing and good thing it had healed properly enough.

He broke his foot twice playing basketball. Both times I told him it was broken but medical said it wasn't. They gave him ice and tylenol and a brace. The 2nd time my son believed me, but he knew they would say it's only sprained. He bought ace bandages and kept it wrapped and supported as much as he could. The first time he couldn't even get around. He asked for a wheelchair and was told no. They did give him crutches eventually. Still, he wouldn't let me call or do anything. This last time, they kept him in the infirmary for 3 days and day 4 finally gave up on their xray tech coming in to work and took him to the hospital. This time, it was only sprained. But the hospital xray showed it had been broken in 2 places. The ER doctor asked him if he knew he had broken his foot twice before.

He has a scar under his eye from a basketball injury.

He has also hurt his back exercising. It has been over 2 years and they did give him a couple of different meds but nothing has really been done to fix it or even diagnose it properly. I suspect he has really messed up a disc.

I suggested he should avoid playing basketball. I am seriously not sure if that is some code phrase or if he really did all those injuries playing basketball.
Lizlizzie,
Your poor son! I can't believe they let him go with broken bones, that is horrendous! At least he was able to get to the hospital the last time and get confirmation his foot was broken twice. More evidence for a class action lawsuit I would think.

Another inmate where my son is, broke his foot playing basketball and he was in a wheelchair for a while but didn't want to be. I guess it made him feel like a target. He did eventually get transferred after he was healed.
It makes me wonder what effect their diet has on their bones. I have told my son over and over to order multivitamins from commissary, I'm sure he never has.

I am sure you are worried about your son, and the suggestion to stop playing basketball is a good one. Its hard when they have to give up things they love to do for recreation.

I wouldn't know how to get him help with his back, but to have him ask for an X Ray to make sure he doesn't have a slipped or damaged disc. I understand you are respecting his wishes to not call the prison. The best he can do is keep documenting his requests for medical care.

Can you get a government official involved? Had I needed to, I would have contacted my state representative to get my son the healthcare he needed. Thankfully it didn't get that far. Back pain can turn into a lifelong debilitating issue. I hope that he gets the help he needs.

Tatonkawia
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Old 06-23-2018, 05:47 PM
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Good for you mom you did the right thing. Be your Loved ones advocate we are all they have out here. I've been my husband's since day one I've called the prisons several times etc. When I do I get ok what needs to be done, done.
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Old 06-25-2018, 07:38 PM
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An update to my update:

I recently wrote to my son, and I wanted to share with all of you, a part of my letter to him.

So.....I've been doing a lot of thinking about what happened with you getting sick. So many times I wanted to sit down and write to you, but I was up against deadlines. But now I have the time.

Do you ever wonder, why God is looking out for you? Why you have been spared a worse fate? I think it is because prison is not meant for you........and what I mean by that is, it is just a trial, but you are meant to come out of it, and go on to do meaningful things with your life, and help others. I'm sure there are some days it is hard to believe that. Everyone has bad days. There are some days I wake up and think, "Why did all of this happen?" But for the most part, I have faith that God is leading you, and me, through this.

I'm telling you this, and I know this 100% - God used me, He used Patti, He used Brian in the infirmary, and he used those nurses in the hospital.... to make you better, to heal you. I think of all the circumstances and people that just happened to come together at the right time in order to get you to the hospital. That wasn't an accident, my son...that was God at work. Have no doubt! When you realize what God has in store for you, you will approach the world differently, with a grateful heart. And a grateful heart is not bitter, nor sarcastic. A grateful heart doesn't have time to criticize what is wrong with the world. It sees what is right. That is why I want you to be thankful for what you have. And be thankful for all that God is doing for you now, and for what you'll have in the future.


I post this here in the hopes that it gives someone else hope, as I have been given hope.

Tatonkawia
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